I’ve struggled with the syndrome since I was very young. 3 years old maybe? Ask me anything and I will do my best ability to answer.
I’m 28 and have low functioning Paper Doll Syndrome. AMA
r/AMA
I’ve struggled with the syndrome since I was very young. 3 years old maybe? Ask me anything and I will do my best ability to answer.
Comments
What’s it like to live with such a syndrome? Also what exactly is it?
Does that mean, your bones breake easyly
To which extent you can do sport ?
Do you have to anything special beyond being super cautious to not hurt yourself?
Is your skin fragile as well, easy to tear like elderly people?
Are your joints loose because of the skeletal-muscular system caused by your diagnosis?
I have a personal interest in medical stuff, and currently in my way to being a massage therapist
How has this affected physical contact and intimacy for you?
Is this the same as osteogenesis imperfecta
“I have glass bones and paper skin” 😭 sorry OP I had to. I guess my question is do you know where that quote is from? Also, wishing you peace and healing.
not to imply your making this up, but how come when i google paper doll syndrome i cant find anything relating to what you’ve described so far
Do you mean Osteogenesis Imperfecta?
Is Paper Doll Syndrome another name for Osteogenesis Imperfecta?
Are you from Antioch?
How many bones, if any, have you broken?
You mentioned in another answer the syndrome brings mental challenges, what might those be ?