Hi everyone. I just wanted to share this without it becoming a long wall of text:
I was admitted to the hospital last night after what I believed to be a 7 day and counting migraine. It took me making a scene and probably coming off as a bit ridiculous to have anyone take me seriously enough. Usually when I visit the Emergency room, I get strange looks and often times hurtful comments. Maybe it’s because migraines are invisible to most onlookers, but I digress.
After what turned into a 24-hour long visit with multiple doctors, imaging, rounds of Toradol infusions, and even lidocaine injections to the skull, I spoke with a migraine specialist. This is a first for me. Until today, I had never met someone who specializes in them.
The discussion was long, but for the first time in what feels like years, I was heard.
My former doctor caused a nerve disorder, something that is rare, and if left untreated, can become excruciating. I have scar tissue running along my Occipital nerves, and am now going to undergo a specialized surgery that few doctors recommend, and even fewer perform.
The healing time from the procedure is three years. I will be 27 years old by that time, having spent a total of 6 years trying to understand and identify what my former doctor truly caused.
This post is not intended to paint me as a victim. It stands again as a cautionary note to anyone, especially women: if something seems wrong with a medical treatment plan put in place for you, always seek other opinions.
Don’t end up in the same position I am in – I will experience complications the rest of my life because I believed someone who deliberately hurts his patients for money and for control.
Comments
I’m just going to suggest that a procedure that few doctors recommend and fewer doctors perform is not a procedure that is associated with good outcomes. Medical care is very standardized id be extraordinary cautious about anything that that is that rare.
Thats doesn’t mean it’s a bad idea. chiari malformation surgery used to be very rare and now it’s standard of care. But you definitely need to be cautious
What did your former doctor do?! Did you ever see a neurologist?
Gosh, I’m so sorry you have to go through all this. Are you going to sue that doctor?
Now that you have a specialist, and know what is happening to you. Ask the specialist to write you a hospital plan. It should be very explicit, and detail exactly what works, what doesn’t, and the severity of your condition. As someone with extreme Migraines, the treatment I receive from the ER, with a detailed “note” changes the care immensely! You’ll no longer be a dramatic drug seeker that knows to much, but as a human being with actual pain, just because a doctor has certified you as having actual pain, and exact instructions on what you need…
Let me guess what the doctor did that caused the issue. Bet it was those non FDA approved steroid injections they’ve been pushing so hard lately.