Disabled adult son who is unbearable to live with

r/

I’ve posted in another sub but we’re at our breaking point. I don’t know what options we have left for our adult son (18).

This has been a years-long battle, and it’s hard to explain without writing a novel. To keep it as short as possible:

Our son has a physical disability and is 100% reliant on a wheelchair. He has no diagnosed cognitive impairments (IQ 119) and is considered intelligent and capable. But he is manipulative, defiant, possibly dangerous towards others and refuses to take care of his hygiene.

He is fully capable of toileting but will instead urinate and defecate on himself, his bed, his wheelchair, and even the floor. We’ve had to completely renovate his room due to damage from feces. He now has a chronic wound on his back (from poor hygiene and pressure sores) requiring a wound vac for almost a year. We drive him multiple times a week for care because home health is “unavailable.” Realistically, I think his behavior has made finding help nearly impossible as no one wants to deal with him. Aside from being difficult his stench is unbearable.

This isn’t new. We’ve involved every resource imaginable over the years—DSC, social workers, therapists, multiple programs. He even spent time in the Department of Corrections but was released early because of these same issues. A forensic psychological evaluation he had stated:

“The most dangerous part is he has exhausted all resources available to him and none have proven effective.”

He’s also been on safety plans because he is not safe around minors or vulnerable people. Personality-wise, he’s manipulative, defiant, and hostile. Today, he left the house again after an argument over inappropriate electronics use (a recurring issue that has led to legal trouble). He says he’ll refuse to come home. He has nowhere else to go and no one else will take him in. He’s basically saying that he’ll live on the street. He left without his wound vac (it fell off due to poor hygiene) and his sister went frantically looking for him worried he’s going to go septic but he just doesn’t care. She did end up finding him but he’s stating that he would rather be on the street than “deal with our rules”. The other part of that is despite his manipulation and arrogance, he is so naive that I know that he will never make it on the streets, and that’s if his wound doesn’t kill him first.

We’ve tried setting him up for independent housing, but I know deep down he isn’t capable of living alone safely. It feels like I’d just be passing the problem to someone else. At the same time, I can’t keep sacrificing my family’s well-being. Outside of him, our household (me, my husband, and our other adult child) is close and loving, but his presence has been nothing but toxic and chaos for years. The smell alone is unbearable. The emotional toll is worse.

I’m riddled with guilt for feeling this way about my own child, but we’ve been told over and over that we’ve done everything right, it’s just hard to feel that way.

We’re in Indiana, and from what I understand there’s no adult protective services here. We’ve been advised to get an updated diagnosis, but nothing seems to fit. Instead we’re told by every professional we speak to that he is a unique case. His therapist at one point said that he would have been willing to give him a diagnosis of Anti Social Personality Disorder but that doesn’t seem to fit either. His therapist was also of the mindset that at 18 if his problems continue, we should not have any guilt washing our hands of him but again it’s a hard thing to try and convince yourself about your own child, especially knowing what I do about his tendencies towards others.

What I want is an option that removes him from our home without abandoning him to the streets or harming anyone. Has anyone been through something remotely similar or found resources that worked?

I feel like we have tried everything imaginable and when people hear our story for the first time, they always go through the same list of things or recommendations. I honestly feel like there isn’t anything left at this point but if anyone has ANY advice, I’m open to any suggestions or thoughts anyone may have.

Comments

  1. Budgiejen Avatar

    Sounds like maybe a group home might be a solution. He’s an adult. You are not obligated to care for him.

  2. AuthenticIndependent Avatar

    The streets in Indiana will be brutal, cold, and people will be less forgiving. Send him to Los Angeles. He may get hooked on drugs though but he will eventually get free housing and government support. That’s why everyone comes here. Terrible for me to say but the midwest doesn’t have enough homeless people that are visible for people to care. Your son sounds like he’s on a path to homelessness. In California – southern California along the coast lines the weather is perfect. Do not leave him to the streets of Indiana. He will get hooked on drugs possibly either way so leaving him in LA or Indiana won’t make a difference but the weather is a major difference.

  3. throwtome723 Avatar

    Look into a group home or a local organization that can provide respite care so you can take a break.

  4. Bungalosis__ Avatar

    You gave him 18 years of your life. He may be disabled physically, but he isn’t worthless because of it. He’s not stupid either, and instead he is choosing to live in filth and to further deteriorate his life standard and he seems to give zero fucks about how it affects your lives and home.

    I know this is hard, it would be for any parent, but you wouldn’t be too selfish here to cut the cord at some point. He is an adult. He does not have too much reason to be as much of a problem as he is. Most physically disabled people like this learn to keep their body clean the best they can.

  5. Dramatic-Couple-4447 Avatar

    I worked with a tough case like that. He needs a group home with other disabled people and they will definitely put him in his place if he try to act out. And he wouldn’t be able to leave the place either due to the group home u worked at was gated. I’m not sure if Indiana has any like that but Nc sure does

  6. Cheeseburgernqueso Avatar

    I don’t have any advice as you all have tried everything. Sounds like he has got some serious mental illnesses and pain from being disabled that he doesn’t want to work through with a therapist.

    I am a therapist. I work with adults now but I used to specialize in adolescents. Parents would come at me desperate for how to get their kids to do homework. I would tell them, “it’s their homework not yours. They either do it or they don’t.”

    No parent that I said that to ever responded well. But the point of this is that people figure it out. If he doesn’t have any cognitive impairment he is purposely torturing you all. Unless people are suicidal humans are genetically made up to survive. Self preservation is real.

    I’d imagine he would get kicked out of a home or any other community living. He’s choosing that. Push everyone away before someone hurts him. I get the defense but eventually you have to work through it and grow up.

    There is no way he can be homeless in Indiana. A lot of areas in California have really good care for the unhoused. Colorado does too but if he can’t get permeant housing the winters will be brutal.

    I am so sorry you’re having this experience with your own son. I’m a new mom and I just can’t imagine being in your shoes.

    Setting him free will come with a different kind of stress. But I imagine it might make yourself and your whole household take a deep breath for the first time in a while.

    You get to choose the stress you want. He stays with you and he stays defiant. Or you set him free knowing he might harm others or not live because he isn’t taking care of himself.

    Sending so much love and strength your way. You’re in an impossible situation.

  7. InternalAd9818 Avatar

    I have no answers for you or suggestions. I’m sorry. But I just want to let you know that you have done everything you can (and then some) and your feelings / thoughts/ emotions are completely legitimate and reasonable. You are a human being, after all. I’m sorry I have nothing else to offer.

  8. KingIbexx Avatar

    What was the inappropriate tech use?

  9. LandscapeOld3325 Avatar

    This is horrible to say, but I think this is an extreme situation that might call for it, have you looked into involuntary commitment?