I was one of the early people diagnosed with MGS, an eye condition that made me blind in one eye at birth. AMA!

When I was 18 months old, my mother took me to a military doctor in Connecticut. I was falling all the time, running into walls, and cooking my head. Initially, the doctor thought it was brain damage, but he was writing a medical paper on people with a specific eye condition. So on a whim, he checked my eyes.

And that’s how my mother found out I had Morning Glory Syndrome. My visual was, at best, 20/200, the threshold of legal blindness.

In the 40 years since that date, I have done whatever I wanted. I had to adapt, yes, but only recently have I realized that people didn’t know I was this blind. Or how this condition works.

Thanks to social media, I have now been able to meet hundreds of people who have my specific birth defect that only affects 1 out of every 1 – 2 million births. Never in my childhood did I ever think I’d be friends with a mom in Australia who just wants reassurance.

So I have a few hours. AMA!