my 4mo son was diagnosed with cancer. AMA

r/

we just lived at our local children’s hospital for 2+ months, half of which was spent in PICU with him on a ventilator. He is almost in remission but we know how tough this can be & how many questions there are so AMA!

edit: I may not answer much more because we’re so busy, but thanks to all the well wishes, condolences & I’m with you to everyone going through it rn. During the shit storm I kept looking on Reddit for someone experiencing anything similar so I wanted ppl to see they aren’t alone in this crap lottery 👍💪💪 our kids are warriors.

Comments

  1. CalligrapherFit8962 Avatar

    I’m so sorry you’re battling this, but I’m glad to see he’ll soon be in remission. When did you notice something was wrong with his health?

  2. Agreeable_Wrap_4724 Avatar

    Can I give you some harsh advice

  3. TempleofSpringSnow Avatar

    No question. I am so so sorry. My best to you all.

  4. stevebradss Avatar

    My son was diagnosed with a type of tumor at 4. Devastating. He is 28 now and doing fine

    Treat him normal. Punish and praise as anyone else. He will test you. He needs your normal response.

    Best wishes

  5. Substantial-Ear2951 Avatar

    Go on YouTube right away and look up Dr Tomas Seyfried.

  6. Pleasant-Success-476 Avatar

    There’s a treatment in Germany, Frankfurt. It’s called TACE you should look into it it’s healed many many people with very serious cancers. 🤍🤍🤍🤍sending love and hugs xxxx

  7. Silent_Medicine1798 Avatar

    Oh mama, I can feel your pain. I have a 14 year old who went from healthy and perfect to a devastating rare disease that is going to eventually destroy her kidneys. It causes her to make kidney stones rapidly – so this is a disease of pain as much as anything else. She has had 7 surfers, 4 ER visits and one pain crisis that required 5 days inpatient to get a handle on – all on the last 15 months.

    The stress that I have seen on other mothers’ faces in the halls of our children’s hospital mirrored my own. Crushing anxiety, sadness, fatigue, all of it. I know you know.

    I remembered how quickly it all happened too. So fast. One appt after another. Phone calls with bad news. The tears behind closed doors bc I couldn’t let me daughter know how scared I was for her life.

    What is the biggest, most durable change that you have seen in your own life since he got better? I know you are changed, bc I am too. But how?

  8. FormerPopCultureIcon Avatar

    I’m so sorry, OP. I hope the worst is behind you now and that your baby continues to improve! My 8-month-old has a heart condition and is in the CVICU now. It’s agonizing as a parent. I would give anything to trade places with him so he wouldn’t have to go through this. I don’t have any questions for you, just wanted to send hugs and best wishes to you and your family.

  9. gimmesuandchocolate Avatar

    Apologies if this is a rude question, but do the doctors have any hypothesis about how the cancer developed? Did it start in utero?
    I’m sorry you are having such a rough start, happy he is doing better and wish him a very long and happy life.

  10. Agreeable_Wrap_4724 Avatar

    My harsh advise to you was this my daughter was born very ill and I never shed a tear in front of her because we are now our kids heros…we will be there for it all if we break so will they I was just gonna suggest taking a shower so you can cry all you want and return and be ready to take on the world until you need that next shower… on days you have appointments make plans to do something after so they have something to look forward too …my favorite appointments for my daughter was October when the fall weather was here and we sitting on a dock at a lake watching thr ducks play and thr fish jump while the sun is sitting even tho inside I’m dying because her young ears don’t understand the severity of thr situation but we have that memory on that day…..I MEANT NO HARM in my harsh advice I was talking and meaning it with my mommy heart đź’”

  11. Interesting-Sun5706 Avatar

    Terrible news .

    Thoughts and prayers 🙏

  12. Huge-Conflict-785 Avatar

    Get a second and third opinion. This hospitals are in the money business never trust them

  13. Successful-Speech224 Avatar

    I work in oncology trials, including pediatric oncology trials. Stories like this make me happy. Best wishes to your family!

  14. Dragon2131 Avatar

    Im so happy that your son is alright. Sending big love to him and the parents đź’™ stay strong

  15. SickOfAllThisCrap1 Avatar

    I’ll be honest. I find your decision to do an AMA a bit strange maybe even a little disturbing. Why did you decide to do this?

  16. Bubble_Lights Avatar

    I’m so glad he is doing better and I wish you all the best.

    My cousin’s son had neuroblastoma diagnosed as a toddler. He made it to age 5 and then succumbed. I have a friend whose son also had it very young and he is in his late teens now.

  17. biinvegas Avatar

    No questions, just wanted to say I hope he beats it.

  18. amiibohunter2015 Avatar

    Sorry to hear you’re all going through this.

  19. asingledampcheerio Avatar

    How many packs a day was he smoking?

  20. ninenineandthe2000s Avatar

    Praying for your son and you!! He is so strong and lucky to have parents who advocated for him

  21. Southernbelle0011100 Avatar

    Sending so much healing and love to your baby. Not to be political but was your baby on the usual vaccine schedule/ had up to date shots?

  22. Twosidedyt Avatar

    Praying for him

  23. Sea_Storm_4960 Avatar

    My daughter was diagnosed at 2.5 with neuroblastoma. Literally an atomic bomb of damage. So glad he’s doing well. Sending you hugs and strength 💜

  24. cheesypasta22 Avatar

    No answer but want to give your family a big hug. I suffered from a severe form of hemangioma, not cancer but I was referred to paeds oncology/ hematology. I’m 23 years old and studying physiotherapy, working in the hospital and aged care 🙂 all the best !!