Throwaway because I don’t want this connected to my main. I’m not looking for advice or discussion—I just need to get this off my chest.
I’ve been in denial about my condition for years, but I know I need to face it. I was diagnosed with glaucoma at 16 and started having ocular migraines about a year ago. Every day, I deal with severe eye pain, and my sensitivity to light is getting worse.
My specialist isn’t very optimistic—he says I might have until my 30s or 40s before I lose my vision completely. Lately, I’ve been noticing strange spots in my sight, and I can tell it’s deteriorating. My family doesn’t fully understand that this isn’t something that can be cured, especially since my condition is genetic.
I don’t want to go blind, but I know I have to be realistic. I’m losing my sight, and I don’t know how to process it. I just needed to put this into words.
Comments
totally understandable. please be kind to yourself. I would be freaked. I’m saying to following to affirm that I get where you are coming from: it’s a 100% not the same. I spent a week blind as a teenager with a fair likelihood it would be permanent (80% blind/20% recovery). it was absolutely terrifying.
There is a super brilliant content creator couple Matthew and Paul. Paul has a rare eye disorder, retinosa pigmentosa (sp?) and he has lost 95% of his vision and is actually an artist even still to this day.
I think you might find a lot of comfort in their work and story
You must be so scared. I’m so sorry.